The internet f*cking rocks

An internet forum may have saved this beautiful baby's life.

See the discoloration in her left eye? That's caused by retinoblastoma, a deadly and devastating childhood cancer. Her mom was concerned about the discoloration and posted this picture to an internet discussion group she had joined, where another mom recognized it as a possible sign of cancer.

"When 32-year-old Megan Santos of Riverview, Fla., noticed that one of her baby daughter's eyes was a slightly different color than the other, her intuition told her that something was wrong.

Concerned, Santos posted a picture of 1-year-old Rowan Santos on the online pregnancy community BabyFit.com, of which she is a member. The picture clearly showed a hazy, white glow in Rowan's left eye -- an atypical reflection of the camera flash not seen in the infant's other eye.

She soon received a message from Madeleine Robb, another 32-year-old mother living in Stretford, the United Kingdom, encouraging her to ask her doctor about a rare but serious cancer that can bring about such a color difference.

Santos followed Robb's advice. And as it turned out, Santos' post may have well saved her child's life.

"After I put the picture up, she saw it, and she sent me a private e-mail in which she said that Rowan might have retinoblastoma in her left eye," Santos said. "She said, 'Not to worry you, but I think you should look at this Web site.'"

The Web site detailed the condition known as retinoblastoma -- a potentially deadly form of childhood cancer that can affect one or both eyes. Immediately, Santos contacted her doctor. She saw him the next day, on the morning of Aug. 8, and he, in turn, referred her to ophthalmology and cancer specialists.

A battery of scans and other tests revealed that Rowan did, in fact, have a cancerous tumor growing on the retina of her left eye.

"Her prognosis is good, as far as the doctor can tell," Santos said. "[The cancer] had not yet reached her optic nerve, which would have then brought it directly to her brain."

Amazing. It never ceases to amaze me how the interwebtubes bring us close together in ways we would never have imagined before.

If you're so inclined, say a prayer for Rowan, for healing and a happy, healthy long cancer-free life.

Posted by: caltechgirl at 11:16 PM | Comments (8) | Add Comment
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The Solution

Thanks for all your suggestions.

I think I'm going to go with Toodledoo, at least for the time being. It has a really useful Firefox widget, and seems to be a small enough page to load well on the phone.

But my favorite feature? You can print out the top 110 items on your list and make a little booklet to carry around and cross out. Best of both worlds!

I'll let you know how it goes!

Posted by: caltechgirl at 11:26 PM | Comments (3) | Add Comment
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The Book

When I was in college, I carried around this little book. It was about 4 x 2.5 inches² and it was blank inside. Well, not blank in the plain white paper sense, but it was lined, and those lines were blank. It was paperbound, with a picture of Albert Einstein on the cover. No, I didn't get it to make me feel smarter, I got it because that's what was available at the Caltech Bookstore.

For much of college Einie was my constant companion. Each line of each page held a reminder of something to do, from the utterly mundane (buy a new toothbrush) to the critically important (get letters of recommendation for grad school) it was all in my little book. I used to mark the last completed page with a receipt for a bookmark, and I was religious about not moving it until I had crossed every item off the list as "done" and made a vertical slash through the list on that page.

My roommate did the same thing, and in fact, he's the one that I stole the idea from. But somewhere along the line, somewhere in grad school, I stopped using the book.

I still make a million small lists, email this person, call that person prep this lecture, call the groomer, etc., but they kind of scatter. I have so many lists now, I forget what's written where. On my desk at the moment are about four small papers with notes, a whiteboard full of notes on things I needed to do last semester, and a big scratch sheet with notes and diagrams and 3 different lists from the last week alone.

I need one list. One that I can carry around and edit. It's funny. I mean, I have always had a memory like a steel trap, but these days I am so busy I have reached the working memory buffer limit. Which is seven items, BTW, which is why phone numbers are 7 digits in this country. Really. Ma Bell hired psychologists to determine the best length to remember...

Anyway, because of this I have become an aficionado of Google Calendar. It's easy to edit, smart, and follows me everywhere. And yet my to-do list has taken a step back in technology. My life in a million little pieces. Of paper.

I so need a useful, carry-able to do list again. Einie was awesome. I need to dig out the empty books I have in a box somewhere and start anew. Although, an online list would be helpful as well. One that I can edit and store online, and most importantly access and edit anywhere. Because you never know when I'll remember something I need to do. Anybody know a good one?

The thing is, I don't do PDAs, I never had a smartphone (although that is coming in the next couple of weeks) and the idea of ANOTHER gadget just to keep my to-do list is utterly ridiculous. But you all are super bright, and well, frankly, often a LOT more tech-savvy than I am. So any suggestions you have for a high-tech replacement for good old einie are VERY welcome and will be much appreciated.

Posted by: caltechgirl at 01:26 PM | Comments (10) | Add Comment
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Show some blog love, won't you?

I know if there was any other way, Jay and Deb wouldn't be asking for help, but they need a significant amount of cash to help keep the lights on after August 22. If you can help out, even by tossing them a couple of dollars, it will be more than appreciated.

They're more than my blogparents, they're friends, and they've had a rough year financially trying to raise three kids. After some really rough patches, expensive car problems, sick kids, and ambulance trips, they are about to get back to being financially stable, except for this one large debt the state allowed them to run up. Jay explains what happened, here.

If you would like to pick up some lovely crocheted items, rather than making a simple donation, you can visit Deb's etsy store. Also, if you're looking for a domain name for a software project, Jay has one for sale. See here.

I'd be so happy if I clicked over there tomorrow and saw that the bills were taken care of. I know you all are so generous and wonderful. It would be awesome to see the B-sphere support people who really need the help rather than funding another Andrew Sullivan vacation!

Posted by: caltechgirl at 12:00 PM | Comments (1) | Add Comment
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Back, y'all

Had a lovely vacation over the weekend on the coast and then at tonight's Dodger game. Many, many pictures as soon as I get the camera hooked up. Maybe tomorrow since I took tomorrow off too. Until then, nappy nap time.

Posted by: caltechgirl at 12:42 AM | No Comments | Add Comment
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I should post something about the Silky Pony

I should post something about the Silky Pony. So here it is.

HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA

(**inhale**)

HAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA

Once a fucking jackass, always a fucking jackass. Now you're a slimy fucking jackass. Couldn't you keep it in your pants?

* John Edward used to be the biggest douche in the universe. Now it's John Edwards.

Posted by: caltechgirl at 05:58 PM | Comments (7) | Add Comment
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For the record,

How the F**k did it get to be AUGUST 5th already??

That is all.

Posted by: caltechgirl at 10:40 PM | Comments (5) | Add Comment
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It must be Birthday Day in FL!

Happy Birthday to two of my favorite ladies!

Mrs. Who made each of them the perfect birthday card, I canna compete. See here and here.

But I did get y'all some balloons.....

Posted by: caltechgirl at 12:20 PM | Comments (2) | Add Comment
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